Resources

Communicating
Dad feeding baby a bottle

How can I start communicating with my baby right now?

This section includes website addresses, contact information, and brief descriptions for organizations, agencies, and corporations that provide information related to children with hearing loss and their families. Websites of the U.S. government are indicated by the phrase “(Federal Website)” after the name of the agency. Each entry is organized into one or more of the following categories:

Hearing Screening

American Speech-Language-Hearing Association (ASHA)
http://www.asha.org/public/hearing/Hearing-Testing/

Provides information on newborn hearing screening.

Address: 10801 Rockville Pike, Rockville, MD 20852
Email: actioncenter@asha.org
(800) 638-8255 — (Voice, TTY)

Centers for Disease Control & Prevention (CDC); NCBDDD; Early Hearing Detection & Intervention Program (EHDI)
https://www.cdc.gov/ncbddd/hearingloss/index.html (Federal Website)

Provides information about children and hearing loss and answers some commonly asked questions. Information about state EHDI programs is also available.

Address: MS E-88, 1600 Clifton Rd, Atlanta, GA 30333
Email CDC-INFO
1-800-CDC-INFO (1-800-232-4636)

Maternal and Child Health Bureau (MCHB), Health Resources and Services Administration (HRSA)
https://mchb.hrsa.gov/early-hearing-detection-intervention-ehdi (Federal Website)

Provides information about children with hearing loss and Early Hearing Detection and Intervention Programs.

Address: Parklawn Building Room 18-05, 5600 Fishers Lane, Rockville, Maryland 20857
(301) 443-2170 — (Voice)
(301) 443-1797 — (Fax)

National Center for Hearing Assessment & Management (NCHAM)
www.infanthearing.org/screening/index.html

Provides information on newborn hearing screening programs, legislation, equipment, and other related issues.

Utah State University
Address: 2880 Old Main Hill, Logan, UT 84322
Email: mail@infanthearing.org
(435) 797-3584 — (Voice)

Hearing Loss

Better Hearing Institute
www.betterhearing.org/

Provides comprehensive information on hearing loss, tinnitus, and hearing aids, as well as a directory of hearing care providers (audiologists, hearing instrument specialists, and otolaryngologists).

Address: 515 King Street, Suite 420, Alexandria, VA 22314
Email: mail@betterhearing.org
(703) 684-3391 — (Voice)

Central Institute for the Deaf
http://www.cid.edu/

A unique network of resources on the progressive treatment of adult and childhood deafness.

Address: 4560 Clayton Avenue, St. Louis, Missouri 63110-1502
(314) 977- 0132 — (Voice)

Hereditary Hearing Loss Homepage
http://hereditaryhearingloss.org

Provides current information on the genetic causes of hearing loss.

House Ear Institute
www.hei.org

National nonprofit research and educational institute that studies the auditory system and provides information on hearing and balance disorders. Also offers professional and general public educational programs.

Address: 2100 W. Third St., 5th floor, Los Angeles, CA 90057
(213) 483-4431 — (Voice)
(213) 484-2642 — (TTY)
(213) 483-8789 — (Fax)

Laurent Clerc National Deaf Education Center
http://www.gallaudet.edu/clerc-center.html

Provides information on various topics related to deafness, including topics of interest to parents of children with hearing loss and multicultural issues.

Gallaudet University
Address: 800 Florida Ave. NE, Washington, DC 20002
Email: Clearinghouse.Infotogo@gallaudet.edu

For general issues related to deafness in children ages birth through 21:
(202) 651-5051 — (Voice)
(202) 651-5052 — (TTY)
(202) 651-5054 — (Fax)

My Baby’s Hearing
www.babyhearing.org

This site was developed by Boys Town National Research Hospital; it provides information about infant hearing loss, how the ear works, family issues, and some available intervention options.

Boys Town National Research Hospital
Address: 555 N 30th St., Omaha, NE 68131
(402) 498-6749 — (Voice)
(800) 448-3000 — (Open 24 hours a day, everyday, Toll-free, Voice)
(800) 448-1833 — (Open 24 hours a day, everyday, Toll-free, TTY)

National Institutes of Health (NIH); National Institute on Deafness & Other Communication Disorders (NIDCD)
www.nidcd.nih.gov/ (Federal Website)

Federal government’s focal point for biomedical and behavioral research in human communication. Website provides information about hearing, ear infections, and deafness.

Address: 31 Center Drive, MSC 2320, Bethesda, MD, 20892-2320
Email: nidcdinfo@nidcd.nih.gov
(800) 241-1044 — (Toll-free, Voice)
(800) 241-1055 — (Toll-free, TTY)

Raising Deaf Kids
Raisingdeafkids.org

Website provides information and resources on hearing loss for parents.

Address: 3440 Market St., 4th floor, Philadelphia, PA 19104
Email: CERP@rit.edu

Family Support

Alexander Graham Bell Association for the Deaf & Hard of Hearing
www.agbell.org

International nonprofit membership organization, support network, and resource center on pediatric hearing loss and spoken language approaches and related issues.

Address: 3417 Volta Place, NW, Washington, DC 20007
(202) 337-5220 — (Voice)
(202) 337-5221 — (TTY)
(202) 337-8314 — (Fax)

American Society for Deaf Children (ASDC)
www.deafchildren.org

A national organization of families and professionals that helps create opportunities for children who are deaf and hard of hearing to gain full communication access, particularly through the use of sign language.

Address: 3820 Hartzdale Drive, Camp Hill, PA 17011
Email: asdc@deafchildren.org
(800) 942-2732 — (Voice Hotline, Toll-free)
1-866-895-4206 — (Voice)
(717) 703-0073 — (Voice)
(717) 909-5599 — (Fax)

Beginnings For Parents of Children Who Are Deaf or Hard of Hearing, Inc.
http://www.ncbegin.org/

Provides emotional support and access to information as a central resource for families with children who are deaf or hard of hearing, age birth through 21 years of age.

Address: P.O. Box 17646, Raleigh, NC 27619
(800) 541-HEAR — (Toll-free for NC only, Voice, TTY)
(919) 850-2746 — (Voice, TTY)

Boys Town National Research Hospital
www.boystownhospital.org/Pages/default.aspx
www.babyhearing.org/parenting/parent-to-parent

Provides parents with a variety of helpful information related to hearing loss in children and information about how some parents have responded to their child’s hearing loss and how they have learned to better cope with it.

Address: 555 N 30th St., Omaha, NE 68131
(402) 452-5000 — (Voice)
(800) 448-3000 — (Voice, Toll-free, 24 hours a day)
(800) 448-1833 — (TTY, Toll-free, 24 hours a day)

Family Voices
www.familyvoices.org

A national, grassroots organization that is a clearinghouse for information and education concerning the health care of children with special health needs.

Address: 2340 Alamo SE, Ste. 102, Albuquerque, NM 87106
Email: kidshealth@familyvoices.org
(505) 872-4774 — (Voice)
(888) 835-5669 — (Voice, Toll-free)
(505) 872-4780 — (Fax)

Hands & Voices
www.handsandvoices.org

Nonprofit, parent driven organization that provides support to families with children who are deaf or hard of hearing.

Families For Hands & Voices
Address: PO Box 3093, Boulder, CO 80307
Email: parentadvocate@handsandvoices.org
(217) 357-3647 — (Voice)
(866) 422-0422 — (Voice, Toll-free)

Cochlear Implants

Cochlear Implant Education Center (CIEC)
https://clerccenter.gallaudet.edu/national-resources/resources/our-resources/cochlear-implant-education-center.html?msclkid=db37ae2fa8f911ecbd1612ea9b5a39ab

A unit of the Laurent Clerc National Deaf Education Center at Gallaudet University. Investigates, evaluates, and disseminates effective practices related to cochlear implant technology and its role in the education and lives of deaf children from birth through high school.

Gallaudet University
Address: 800 Florida Ave. NE, Washington, DC 20002
(202) 651-5638 — (Voice, TTY)

NIDCD Information Clearinghouse
https://www.nidcd.nih.gov/health/cochlear-implants (Federal Website)

Answers the following questions: What is a cochlear implant? How does a cochlear implant work? Who gets cochlear implants? How does someone receive a cochlear implant? What does the future hold for cochlear implants? Where can I get additional information?

National Institutes of Health (NIH); National Institute on Deafness & Other Communication Disorders (NIDCD)
Address: 1 Communication Avenue, Bethesda, MD 20892-3456
Email: nidcdinfo@nidcd.nih.gov
(800) 241-1044 — (Voice, Toll-free)
(800) 241-1055 — (TTY, Toll-free)

Communication Options

Auditory/Verbal

Auditory Learning Center
http://auditorylearningcentre.com

The Center’s objective is to promote listening and speaking as a way of life for children who are deaf or hard of hearing.

Address: Cameron Village 400 Oberlin Road, Suite 205 Raleigh, NC 27605
P.O. Box 12050
E-mail: rosalie@auditorylearningcentre.com

Grafe Media
Address: 1715 Eighth St. East, Menomonie, WI 5475
(715) 232-9467 — (Voice)

National Cued Speech Association
www.cuedspeech.org

Nonprofit membership organization that provides information about Cued Speech and its applications and educational services. Establishes standards for Cued Speech and certifies Cued Speech instructors and transliterators.

Address: 5619 McLean Drive, Bethesda, MD 20814
Email: Info@cuedspeech.org
(800) 459-3529 — (Voice, TTY, Toll-free)
(301) 915-8009 — (Voice, TTY)

Oral Education

Alexander Graham Bell Association for the Deaf & Hard of Hearing
www.agbell.org

International nonprofit membership organization and resource center on hearing loss and spoken language approaches and related issues.

Address: 3417 Volta Place, NW, Washington, DC 20007
(202) 337-5220 — (Voice)
(202) 337-5221 — (TTY)
(202) 337-8314 — (Fax)

Oral Deaf Education “MAKE a joyful noise” information kit
http://handsandvoices.org/comcon/articles/aud_oral_edu.htm

Provides parents and pediatric professionals with resources and information about oral education for children who are deaf or hard-of-hearing. The kit includes a handbook, video, copies of articles, and a reading list for parents.

Email: webmaster@oraldeafed.org
(877) ORALDEAF (672-5332) — (Voice, Toll-free)
(877) 672-5889 — (TTY)

Total Communication

The S.E.E. (Signing Exact English) Center for the Advancement of Deaf Children
http://seecenter.org/

Although this is not strictly a site for information on Total Communication, S.E.E. is often used in Total Communication programs.

Nonprofit organization to work with parents and educators of children who are deaf and hard of hearing. Provides information on Signing Exact English and its uses with the goal of improving English skills and communication.

Address: P.O. Box 1181, Los Alamitos, CA 90720
Email: seecenter@seecenter.org
(562) 430-1467 — (Voice, TTY)
(562) 795-6614 — (FAX)

SKI-HI Home Total Communication Video Program: 30-minute video tapes (1999)
https://hopepubl.com/product/ski-hi-home-total-communication-program-entire-program-dvd/?msclkid=7693acbea8fc11eca9920ebb9c84354c

Video tapes that include topics on the family, daily routines, mealtime and food, clothing, the body and feelings, living and working in the home, play and toys, and going places. Each tape is 30 minutes and sold as a 10-tape set.

Hope Publishing, Inc.
Address: 1856 North 1200 East, North Logan, Utah 84321
Email: hope@hopepubl.com
(435) 245-2888 — (Voice, Fax)

Deaf-Blind

American Association of the Deaf-Blind (AADB)
www.aadb.org/

National consumer organization of, by, and for deaf-blind Americans. “Deaf-blind” is a broad term that describes people who have varying degrees and types of both vision and hearing loss together.

Address: 814 Thayer Avenue, Suite 302, Silver Spring, Maryland 20910-4500
Email: info@aadb.org
(301) 495-4403 — (Voice)
(301) 495-4402 — (TTY)
(301) 495-4404 — (Fax)
AIM Buddy Name: AADBOffice

Helen Keller National Center for Deaf-Blind Youths & Adults
http://www.hknc.org/

Deaf-blind school that offers intensive and comprehensive rehabilitation training to youth and adults who are deaf-blind. Also provides field services and general information.

Address: 1141 Middle Neck Road, Sands Point, NY 11050
Email: HKNCinfo@hknc.org
(516) 944-8900 — (Voice)
(516) 944-8637 — (TTY)
(516) 944-7302 — (Fax)

National Family Association for Deaf-Blind
https://nfadb.org/

Federally funded information and referral service that identifies, coordinates, and disseminates information related to children and youth who are deaf-blind.

DB-LINK
Teaching Research
Address: 345 N. Monmouth Ave., Monmouth, OR 97361
(800) 438-9376 — (Voice, Toll-free)
(800) 854-7013 — (TTY, Toll-free)
(503) 838-8150 — (Fax)

Deaf Culture

Dawnsign Press
www.dawnsign.com

American Sign Language and Deaf Culture Materials (books, videos, workbooks, etc.).

Address: 6130 Nancy Ridge Drive, San Diego, CA 92121-3223
Email: info@dawnsign.com
(800) 549-5350 — (Toll-free)
(858) 625-0600 — (Voice)
(858) 625-2336 — (Fax)

National Association of the Deaf (NAD)
www.nad.org/

Provides information on programs and activities including grassroots advocacy and empowerment, public awareness, deafness-related information, legal assistance, and policy development.

Address: 814 Thayer Avenue, Silver Spring, MD 20910-4500
Email: NADinfo@nad.org
(301) 587-1788 — (Voice)
(301) 587-1789 — (TTY)
(301) 587-1791 — (Fax)

Sign Media, Inc
www.signmedia.com/info/smi.htm

Videotapes and print materials on American Sign Language and American Deaf Culture.

Address: 4020 Blackburn Lane, Burtonsville, MD 20866-1167
Email: info@signmedia.com
(800) 475-4756 — (Toll-free)
(301) 421-0268 — (Voice)
(301) 421-4460 — (TTY)
(301) 421-0270 — (Fax)

Educational Resources

Council on Education of the Deaf
www.deafed.net

This site facilitates informational sharing and collaborative activities within the field of deaf education.

Kent State University
Address: 405 White Hall, College of Education, Kent, OH 44242-0001

Gallaudet University
www.gallaudet.edu

This site provides information on the only liberal arts university in the United States for undergraduate students who are deaf and hard-of-hearing. Graduate degree programs and continuing education courses are available as well. In addition, the University’s Laurent Clerc National Deaf Education Center serves deaf and hard-of-hearing children at its two demonstration schools and throughout the nation.

800 Florida Avenue, NE, Washington, DC 20002-3695
(202) 651-5000 — (Voice, TTY)

National Technical Institute for the Deaf (NTID)
www.ntid.rit.edu/

This site provides information on the world’s first and largest technological college for deaf and hard of hearing students. NTID provides deaf and hard-of-hearing students with technical and professional education programs, complemented by a liberal arts and sciences curriculum.

National Technical Institute for the Deaf
Rochester Institute of Technology
Address: 52 Lomb Memorial Dr., Rochester, NY 14623
(585) 475-6400 — (TTY and Voice)
(585) 475-5978 — (Fax)
Email: ntidmc@rit.edu

Office of Special Education and Rehabilitation Services (OSERS), U.S. Department of Education (ED)
https://www2.ed.gov/about/offices/list/osers/index.html (Federal Website)

OSERS supports programs that help educate children and youth with disabilities, provides for the rehabilitation of youth and adults with disabilities and supports research to improve the lives of individuals with disabilities.

Address: 400 Maryland Ave., S.W. Washington, DC 20202-7100
(800) 872-5327 — (Toll-free)
(202) 245-7468 — (Voice)
(800) 437-0833 — (TTY)

Parents as Teachers National Center, Inc. (PAT)
https://parentsasteachers.org/

PAT is an international early childhood parent education and family support program. PAT serves families throughout pregnancy until their child enters kindergarten, usually age 5. The program is designed to enhance child development and school achievement through parent education accessible to all families. It is a universal access model.

Address: 2228 Ball Drive, St. Louis, Mo. 63146
(314) 432-4330 — (Voice)
(314) 432-8963 — (Fax)
(866) PAT4YOU; (866) 728-4968 — (Toll-free)

Hard of Hearing Children

Hearing Loss Association of America
www.hearingloss.org/

Provides adults and children with the tools for self help; sensitizes the general population about the special needs of people who are hard of hearing.

Address: 7910 Woodmont Ave, Suite 1200, Bethesda, Maryland 20814
E-mail: info@hearingloss.org
(301) 657-2248 — (Voice)
(301) 657-2249 — (TTY)
(301) 913-9413 — (Fax)

Professional Organizations

American Academy of Audiology (AAA)
www.audiology.org

Dedicated to providing quality hearing care to the public and provides consumer and professional resources related to hearing care.

Address: 11730 Plaza America Drive, Suite 300, Reston, VA 20190
(800) AAA-2336 — (Voice, Toll-free)
(703) 790-8466 — (Voice)
(703) 790-8631 — (Fax)

American Academy of Family Physicians (AAFP)
www.aafp.org/

A national medical organization of more than 93,000 members (family physicians, family practice residents, and medical students).

Address: 11400 Tomahawk Creek Parkway, Leawood, KS 66211-2672
(800) 274-2237 — (Voice, Toll-free)
(913) 906-6000 — (Voice)

American Academy of Otolaryngology — Head and Neck Surgery
www.entnet.org/

The world’s largest organization of physicians dedicated to the care of ear, nose, and throat disorders. This site provides health tips and information related to hearing disorders.

Address: One Prince St., Alexandria, VA 22314-3357
Email: info@entnet.org
(703) 836-4444 — (Voice)

American Academy of Pediatrics (AAP)
https://www.aap.org/
http://www.aap.org/en-us/advocacy-and-policy/aap-health-initiatives/PEHDIC/Pages/Early-Hearing-Detection-and-Intervention.aspx

Provides information, alerts, and resources related to the physical, mental, and social health of infants, children, adolescents, and young adults.

Address: 141 Northwest Point Boulevard, Elk Grove Village, IL 60007-1098
(847) 434-4000 — (Voice)

American Speech-Language-Hearing Association (ASHA)
www.asha.org

Provides information for the public, professionals, and students about communication and communication disorders.

Address: 10801 Rockville Pike, Rockville, MD 20852
Email: actioncenter@asha.org
(800) 638-8255 — (Voice)

Resources & Services

Bright Futures at Georgetown University
www.brightfutures.org

The mission of Bright Futures is to promote and improve the health, education, and well-being of infants, children, adolescents, families, and communities.

Address: 2115 Wisconsin Avenue, N.W., Suite 601, Washington, DC 20007-2292
(202) 784-9556 — (Voice)
(202) 784-9777 — (Fax)

Hands & Voices
www.handsandvoices.org

Nonprofit, parent driven organization that provides services, resources, and support, to professionals and families with children who are deaf or hard of hearing.

Families For Hands & Voices
Address: PO Box 3093, Boulder, CO 80307
Email: parentadvocate@handsandvoices.org
(217) 357-3647 — (Voice)
(866) 422-0422 — (Voice, Toll-free)

John Tracy Clinic
www.johntracyclinic.org

Nonprofit organization that provides, world-wide and without charge, parent-centered services to young children with a hearing loss. Services include audiological testing, parent and infant programs, parent classes, a preschool, and a correspondence course that includes information about cochlear implants and auditory development.

Address: 806 West Adams Blvd., Los Angeles, California 90007
Email: web@jtc.org
(213) 748-5481 — (Voice)
(213) 747-2924 — (TTY)
(213) 749-1651 — (Fax)
(562) 426-2257 — (Voice)
(562) 426-8437 — (Fax)
(800) 522-4582 — (Voice, Toll-free)

Raising Deaf Kids
http://raisingandeducatingdeafchildren.org/

Website provides information and resources on hearing loss for parents.

Address: 3440 Market St., 4th floor, Philadelphia, PA 19104
E-mail: info@raisingdeafkids.org

Sky-HI Institute
http://www.ski-hi.mystrikingly.com/

Provides information for assisting infants, toddlers, and young children with disabilities and their families through research, development, promising practices, training, technical assistance, and information sharing, related to the needs of children with hearing loss, aged birth through 5 years of age.

Utah State University
Address: 6500 Old Main Hill, Logan, UT 84322-6500
Email: skihi@usu.edu
(435) 797-5600 — (Voice)
(435) 797-5584 — (TTY)
(435) 797-5580 — (Fax)

ZERO TO THREE: National Center for Infants, Toddlers and Families
www.zerotothree.org

A national non-profit organization that promotes the healthy development of infants and toddlers by supporting and strengthening families, communities, and those who work on their behalf. Dedicated to advancing current knowledge; promoting beneficial policies and practices; communicating research and best practices to a wide variety of audiences; and providing training, technical assistance and leadership development.

Address: 2000 M Street, NW, Suite 200, Washington, DC 20036
(202) 638-1144 — (Voice)

State Resources

Laurent Clerc National Deaf Education Center
http://www.gallaudet.edu/clerc-center.html

Provides information and referral services to children who are deaf or hard of hearing in each state.

Gallaudet University
Address: 800 Florida Ave. NE, Washington, DC 20002
E-mail: Clearinghouse.Infotogo@gallaudet.edu

For general issues related to deafness, contact:
(202) 651-5051 — (Voice)

Maternal and Child Health Bureau (MCHB), Health Resources and Services Administration (HRSA)
https://mchb.hrsa.gov/maternal-child-health-topics/perinatalinfant-health (Federal Website)

Provides information about children with hearing loss and Universal Newborn Hearing Screening programs.

Address: Parklawn Building Room 18-05, 5600 Fishers Lane, Rockville, Maryland 20857
(301) 443-2170 — (Voice)
(301) 443-1797 — (Fax)

National Center for Hearing Assessment & Management (NCHAM)
www.infanthearing.org/states/

Provides information about newborn hearing screening programs, contacts, and resources related to hearing loss in each state.

Utah State University
Address: 2880 Old Main Hill, Logan, UT 84322
E-mail: mail@infanthearing.org
(435) 797-3584 — (Voice)

Unilateral Hearing Loss

Boys Town National Research Hospital
http://www.boystownhospital.org/Pages/default.aspx

Information about unilateral hearing loss in children, its effects, and where to seek further information.

Audiology Department
Address: 555 North 30th Street, Omaha, NE 68131
(402) 452-5000 — (Voice)

Military Audiology Association
http://militaryaudiology.org/

Provides information and several links to information and resources on unilateral hearing loss.

Address: 5137 Clavel Terrace, Rockville, MD 20853
E-mail: webmaster@militaryaudiology.org